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International Pompe Day's Run Walk or Roll Event

Every Move Counts!

Run, Walk or Roll Event - 2025

Join us for the virtual Run, Walk, or Roll event in celebration of International Pompe Day! Taking place from April 1st to April 15th, this event is all about raising global awareness for Pompe Disease—a rare genetic disorder that leads to muscle weakness, breathing difficulties, and heart complications. Early diagnosis and treatment are key, and by participating, you're helping shine a light on the importance of recognition, support, and community for those affected.

Our theme, “Every Move Counts,” reminds us that whether you walk, run, or roll, every step truly makes a difference. Registration is open through April 14th, so don’t wait—get involved, share your journey using the hashtags #EveryMoveCounts #PompeAwareness #InternationalPompeDay2025, and let’s come together in resilience and unity!

Tell your friends and family to spread the word. Together, we’re strong!

How to Participate:

* Register: Secure your spot by registering on our form. Registration is open until April 14th! Don’t wait!

* Log Your Distance: Once registered you will receive your virtual bib number. With this number you can start logging your miles through the form on the website. Every step, or roll counts towards your distance in raising crucial awareness. Feel free to log each day or log your distance all at once at the end.

* Track the Leaders: Stay updated on the top participants by following our leaderboard.

* Get Your Gear: Show your support by ordering an official Pompe Day t-shirt! US participants can order directly on the shop page. International participants, we've got you covered! Download the printable file on the shop page and have your shirts made locally.

* Share Your Journey: We want to see your moves! Post pictures and videos of your run, walk, or roll, and be sure to tag us. Let's flood social media with awareness and unity!