Every Move Counts!
About Us
The IPA is excited to announce that the international Pompe community has chosen April 15 as the annual International Pompe Day!
International Pompe Day
The goal of International Pompe Day is to foster international awareness of Pompe Disease and the slogan for our day is “Together We Are Strong”.
This year, we are focusing on raising awareness of the importance of movement.
Pompe can affect people differently at different points in their lives, but the important thing to remember and focus on is but the important thing to remember and focus on is that “Every Move Counts.” In order to celebrate what we can do, and not focus on what we can’t.
Visit our International Pompe Day blog (years 2019-2022): https://ipompeday.blogspot.com/
Participate in the International Pompe Day Activities!
Become a Supporter! Organizations are invited and encouraged to become Supporters of
International Pompe Day by submitting their logo (or name) for publication on theInternational Pompe Day website. Please email your logo to [email protected]
Buy Your Official International Pompe Day Merchandise! Merchandise is available at theInternational Pompe Day Shopon Cafe Press. The Shop is hosted by the Acid Maltase Deficiency Association and proceeds will go towards Pompe Disease Awareness.
WE NEED YOUR HELP!
To further research into Pompe Disease, as well as support Pompe patients around the world, private funds must be raised. If you are interested in learning more about Pompe Disease and would like to make a contribution in support of necessary research, please contact us at: